Fellow blogger Calum Carr is fighting for proper NHS treatment for his wife. Mrs Carr suffers from eating disorders and for more than a year the mental health service has let her down quite badly and she has failed to get the treatment she needs so badly. The local MSP has also taken up the case, but NHS Lothian have still be unforthcoming with their answers.
Please take time to visit his blog and support him in his campaign.
"I have spoken to 5 national treatment centres and all have said that Mrs Carr is the type of patient they should see but we can't access them. On the basis of two self-reporting questionnaires one centre said that Mrs Carr scored highly for the relevant disorders and should have a full assessment. This has been denied to Mrs Carr by NHS Lothian.
I should make clear that I am not taking the line that Mrs Carr has Disorder Z and that I won't rest until she is diagnosed with it. Her history and symptoms fit with Disorder Z; national experts believe she should be assessed for this disorder but NHS Lothian remains silent on their diagnosis and reasons. Until NHS Lothian is open and honest with us I will not rest. This is all I ever wanted; openness, honesty, trust in clinicians so that Mrs Carr has an opportunity to improve. What we have encountered is coldness, closedness, callousness, obfuscation, delay and a refusal to engage in any serious discussion of Mrs Carr's problems.
The minimum NHS Lothian should do is tell us the truth. Then we can either accept their version or fight it but by refusing to engage with us (or our MSP) they leave us struggling in a vacuum. How can we accept a diagnosis if no-one tells us what is the diagnosis? How do we challenge a diagnosis if no-one tells us what is the diagnosis. How do we fight for assessment if no-one tells us why they won't make a referral?
Even worse by not engaging with us Mrs Carr has been left ill and, apparently, unwanted, for an additional year with no likelihood of effective assessment or treatment and the rest of the family has been left with the stress of caring for Mrs Carr and of seeing her continue to suffer unnecessarily."
14 comments:
Good, Cherie.
THANK you, Cherie.
I think you have chosen a good extract - one of my better sequences!
There's a long way to go but I've already got further with the campaign than I thought likely at the start.
NHS, you'd better watch out: "The Fight for Mrs Carr" is growing and it's coming your way!
James - I am hoping it works, my serious posts usually come up high in google search and get some very interesting hits...
Calum - You are most welcome. I am glad you like the quote I chose, I thought it summed up the situation nicely!
Good job Cherie, it's a slow but steady process but hopefully some good will come of it for Calum's wife sake.
Thanks jmb, campaigns are always slow, but you have to make the start. If you don't there is no chance of that good outcome!
Well done, cherrypie.
Thanks Welshcakes, I am hoping that together we can make a difference!
Good to see many peoples support the Carr family. :-)
Supporting one another, so assuring in a world of disaray!
Nunyaa - Yes :-)
D - It is the only way :-)
CherryPie
I have a badge / button in my sidebar promoting my campaign.
It would be helpful if supporters displsyed it. BUT other than this message there is no pressure. If for any reason you wish not to display it that's absolutely fine. I really mean that. Only display if you want to.
Calum - I will be adding it soon :-) Just need a few minutes for working out the code in my sidebar :-)
Yes!!! thank you. Didn't realise that adding this ws so difficult. Shows how little I know.
I don't think it is your lack of knowledge. I can write web pages, but blogger messed with my code when I tried this last time. Good job Phil was able to get it to work :-)
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